Monday, May 25, 2015

Gratitude Journal #269



Today, I am grateful for all the men and women who gave everything they had in service to our great country.

What are you grateful for today?




Saturday, May 16, 2015

Ch-Ch-Ch-Changes


“Life is a series of natural and spontaneous changes. Don't resist them; that only creates sorrow. Let reality be reality. Let things flow naturally forward in whatever way they like.” Lao Tzu


As winter has changed to summer, I have watched with delight as a bleak, brown, skeletal landscape transforms with pastel blushes of pink, purple, and blue into a dense, lush green. Animals have cover to protect their babies, birds build nests, eggs break open, and the whole cycle of life plays out in front of us.

It's been a lovely spring. So much beautiful change.

I've never been able to relate to mothers who want to freeze their children at a certain age, who sob in despair when putting their kindergarteners on the bus for the first time, who regret their adolescent's need for deodorant. I look forward to each new phase and milestone...because sometimes it takes us so long to get there.

Such is the life of a parent whose child has developmental delays. We want that next developmental step forward like a heroin addict wants another hit. We want to see those changes as evidence that all the therapies and schools and interventions are working because so much of our selves and our resources gets poured into each tiny step.

Children on the autism spectrum, however, resist change.

That must be the single biggest understatement I've typed on this blog in seven years. Consider this one example of dozens I could rattle off without effort. When Jack outgrew his favorite robe a few years back, he refused to accept a new one with tears and anger and fear that the old robe would go away, to the dump, or to someone else who wouldn't be Jack. After pushing as hard as seemed reasonable, I put the new robe in the top of his closet, where it sat for almost two years as he continued to wear the old one. Eventually, he accepted that the old robe simply wouldn't fit anymore and pulled out the no-longer-new one.

Wasn't I smart to buy too big a robe in expectation that it would fit when he finally accepted it? Mommies learn these sorts of tricks after a few years of shoes worn despite holes, coats worn with inches of arm showing, shorts worn until they are tight past decency. I sometimes wonder what teachers must think of me, but I am not bothered by their judgment. I don't have time to be bothered. Jack's resistance to changes in his wardrobe has turned me into a special ops warrior mommy, smuggling ill-fitting or worn clothing out of Jack's room when he's at school and rushing the reusable garments to Salvation Army that very day. Bags lying around or boxes in the back of my car might be inspected...with predictable results.

After years of adjusting to changes made as gently as possible, Jack is slowly improving and adopting new articles of clothing or shoes with, well, not ease, exactly, but at least not with panic attacks.

Some ignorant people don't understand why parents of children with autism don't make their kids do what needs to be done. Clearly, they've never seen an autistic tantrum. These aren't your typical, willful toddler tantrums...autistic tantrums are motivated by fear. Studies show the fight-or-flight response in people with autism is triggered easily by sudden changes or any other stimulus they perceive as a threat. Their bodies flood with adrenalin just like an impala's body involuntarily reacts to a lion chasing it.

You can't spank that sort of fear out of someone.

Jack trusts me...most of the time. He trusts me because I don't force him too far out of his comfort zone very often, because I didn't rip the too-small robe off of him and throw it away in front of him, because I didn't react to his tantrum at the eye doctor by smacking his butt and grabbing his arm and making him look in the green-flashy machine that he said hurt his eyes.

I choose my battles carefully. For the most part, I've learned how to push and when to pull back. I pay attention to Jack's tone and response to the idea of change. I let him work through his feelings in his own time. Do I get impatient and frustrated? Sure. Do I screw up and snap and yell? Yep. But most of the time, I focus on creating an environment that will help Jack overcome his delays in positive, nurturing ways.

It's exhausting.

On Palm Sunday, as we headed to church, Jack announced, "Mom, I'm too old for Ms. Kim's class. I need to move up." You see, Ms. Kim runs the K-4 Sunday school class. I'd been trying for two years to convince Jack he needed to move up to the 5th-6th grade class. At the end of 6th grade, he finally made up his mind.

I said, "I'll talk to Ms. Kim and ask which room you need to go to."

He said, "No, I'll do it."

And he did. He even waited patiently while Kim finished a conversation with another adult...which, if you have 12-year-old with or without autism, you know is a miracle itself.

That night, I asked Jack what he'd learned in Sunday School, and he immediately answered, "Some Jews gave Jesus away to be crucified." Let's savor this answer for a moment. It means Jack actually listened. His typical rote reply to my question--for years--has been "Jesus was born in Bethlehem." Yes, he learned that in Sunday school...when he was five. Now that he decided he was too old for the K-4 class, he appears to have also decided to listen. Yay!

When your child has developmental delays, the smallest changes signaling progress are embraced, cheered, celebrated. You learn to ignore the standardized test scores that measure how your child stands up against a million others, because that's just meaningless and depressing. Instead, you focus on the progress itself, and you find that there's a lot of joy in accepting the reality of it.

Moms who want their children to stay young don't know what they are asking for.

Lao Tzu says we should let changes come naturally, and Jack has taught me the truth in that. Change won't be rushed, and it won't be slowed. We can't control it. It just...is.

It's been such a lovely spring. So many beautiful changes.

Tuesday, May 12, 2015

The Difference Between Fantasy and Reality



The Fantasy:
What I Would Love to Make
(Source)

The Reality:
What I Have the Patience, Skill, and Will to Make


This is why my sister, Lisa, calls me the Anti-Martha. It started shortly after my firstborn arrived, and Martha Stewart sent me an utterly ridiculous Baby magazine, the cover of which featured a first-birthday cake made with fondant and surrounded by little, hand-made party favors. At the time, I was doing great to get a shower every day while washing a gazillion loads of poopy-pukey laundry and spending 45 hours per day breast feeding. I ranted to my still-pregnant sister that my son would get such a cake only if Martha sent her hoard of assistants to make it for him. Lisa dubbed me the Anti-Martha.

Confirmed.

Just keepin' it real here on Questioning.

And happy birthday to my honey. You rock!

Monday, May 11, 2015

Gratitude Journal #268

Today, I am more grateful than I can say for George, Nick, and Jack, who made my Mother's Day the best ever.

Today, I am grateful to the mother who gave birth to me those many years ago. I was breech, and she had a most unpleasant time delivering me. That's when gratitude starts! I can't say she had an easier time during my teens, either. I am also grateful for my mother-in-law who raised my husband so well that he does most of the cooking. Thanks, Barb!

Today, I am grateful for flowers, including the lilac and rose bushes George planted for me Saturday and the pansies we saw outside a restaurant Saturday night. I didn't take a picture, but they were purple like these!

Source

What are you grateful for today?

Tuesday, April 28, 2015

Gratitude Journal #267

Today, I am grateful my husband is such an excellent photographer. All photos on this post are his.

Today, I am grateful for Jack's interest in the trumpet. The 6th grade band played for the opening of the hometown expo a few weeks back, and George got a few awesome pictures!



Today, I am grateful for all the amazing depth of talent in our high school. The performance of Shrek: The Musical last weekend had me toe-tapping in my seat! Everything was excellent, from the sets and lighting to costumes and makeup to acting and singing to the orchestra in the pit!

Nick is the middle guard.

Shrek and Donkey. Can you imagine wearing those costumes and makeup
for four whole performances?

Lord Farquaad was delightfully nasty and so funny, but crawling around on
his knees must have been really tough!

Teen Fiona in her solo from "I Know It's Today"

Nick on left as Burnt Knight #1

Fiona and the Pied Piper

Fiona and Shrek, with Donkey in the background

Three Blind Mice

Farquaad on his horse, with the knight clopping the coconuts together...a
fun reference to Monty Python. Farquaad exited as his horse was backed
of the stage to the sound of a dump-truck backing signal!

Gingy and Pinocchio and other fairytale creatures

The Three Little Pigs and the White Rabbit

Nick protecting Farquaad from Mama and Papa Bear
 
"Oh, my!"

The finale

 
Cast picture
As you can see, this was a huge production, and it was a resounding community success. I love how many kids had solos, and how many participated both on stage and off.

My heart is full of gratitude today. So tell me, what are YOU grateful for?

Thursday, April 23, 2015

Happy Birthday, Will

Today is the presumed birthday (and certainly death day) of my dear friend Will. I don't know whether to be or not to be sad that all the world's a stage, and we're merely players, that we sleep, we dream. But I rejoice that because of him, I know a bank whereon the wild thyme blows, where oxlips and the nodding violet grows, and hopefully this makes me a witty fool and not a foolish wit because I walk along this bank wisely and slow...they stumble that run fast. He taught me that.

But the oxlips and violets, like my Will, will die; in fact, all that lives must die, passing through nature into eternity. Just so are Rozenplantz and Guildenfern.

Source

To my dear Will, a fellow of infinite jest, of most excellent fancy, we've missed you these past 399 years, but no legacy is so rich as your honesty and your art.

Thank you.

Wednesday, April 22, 2015

Gratitude Journal #266

Today, I am grateful for lunch with my friend Tina. When I'm feeling drained, time spent with her energizes me.

Today, I am grateful for my allergy medicine. I can't take it this week because of tests on Friday, and boy, does it do me good when I take it! I'm also grateful to have FINALLY cleared the referral to the allergist through Tricare.

Today, I am apologetic for demoting my brother-in-law in my last gratitude post. He got tenure years ago; he recently was promoted to full professor. Sorry, Tom!

Today, I am grateful for turtleneck sweaters. It got cold in Ohio this week!

What are you grateful for today?